Sydney Swans star Gary Rohan has revealed he and his wife are expecting twins but in a devastating turn one of the babies will not live long after the birth.
Rohan and his wife Amie have revealed that one of the twins, due in May 2018, has been diagnosed with a serious birth defect called anencephaly.
With anencephaly the baby is born without parts of the brain and skull and will die shortly after.
The pair shared the heartbreaking news on an Instagram post.
On the post Rohan urged others affected to come forward and talk to them and believed revealing the diagnosis was a form of therapy for the pair.
“(Amie) and I are over the moon to share with you all that we have been blessed twice over,” Rohan wrote.
“Sadly, one of our beautiful bubs has been diagnosed with anencephaly.
“Our brain is very sensitive, so to live our brain must have cushion and protection. Since our brain tells our heart to beat, our lungs to breath, our legs to move and so on, these babies live from a few moments to a few hours after birth.
“Babies born with anencephaly are not compatible with life.
“Ames and I have known about this since our 11-week scan, and since knowing, we’ve been constantly discussing what we should do, how we should tell people and if we should tell people at all.
“We come to the decision that either way, both our babies are beautiful, precious human beings, with the only thing being that sadly ones life is destined to be cut short.
“There are going to be some really difficult days ahead but also many happy ones, and we want to share each and every one of those moments with you all.
“Talking about our situation with people has been our therapy, letting our emotions out has been the best thing for us personally.
“We would love for anyone who has been affected by anencephaly themselves or know of others affected by anencephaly to please contact us.
“Don’t be afraid to talk to us about it. That’s what we want, we want people to ask questions, we want to talk about it with others. We still need questions answered as much as everyone else.
“And at the end of the day, we will always be parents to twins, our journey has just been written a little differently to others.”